The person inside the person with MS in the wheelchair
On November 1st 2018 I was admitted to hospital and would never return to my flat. On November 1st 2019 I moved in to a home of my own again. I was medically fit to leave hospital after three weeks but stayed for two months while a social worker looked for suitable housing for me. … Continue reading A Year On… Part Two: Home
One day I fell in love with a flamingo. Not a live flamingo. Not any old flamingo. A Fabergé flamingo. In the jewellery section at the V&A museum there is a cylindrical display case with a spiral of Fabergé animals. Right at the top is a flamingo, or my flamingo as I now consider it. … Continue reading Flamingos
Well, it’s been over a year since I was living in a nursing home, hitting the media and fighting a fight that couldn’t be won against the government policy on paying for care. A lot has changed in the past year and it’s time for an update! I shall start with money. I finally managed … Continue reading A Year On…Part One: Money.
It all started with my blog about my financial situationMy Money. Personal vs Political A friend I lived with when I first moved to Brighton kindly shared it with her sister, a journalist who thought it was a story worth telling. Rebecca wrote a great article and checked every bit of it with me for … Continue reading The Mail on Sunday and beyond….
Before I can start again I need to take stock of what I have lost. Up until October 2018 I was living in a one-bedroom flat I had owned for 10 years. I was working full time as an assistant head for the pupil referral units in West Sussex. I drove an adapted car which … Continue reading Starting again.
Just over a year ago I began to really struggle with my health. I had worked full time as a teacher since being diagnosed with MS 17 years ago and was currently working as a non-teaching assistant head. It was my ideal job – mostly desk based without a teaching timetable but some contact with … Continue reading My Money. Personal vs Political
This is a talk I gave at a wonderful evening on Wednesday 6th March for an event to mark International Women's Day. It was a collaboration between Youjuice and the Syndicate Kitchen hosted at Silo in Brighton. https://www.youjuice.co.uk/ https://twitter.com/syndicate_ktchn?lang=en http://www.silobrighton.com/ Anita at Youjuice gave it the title Overcoming MS and I have added the question … Continue reading Overcoming MS?
Day zero https://www.youjuice.co.uk/ I have been nourished by Anita's food and juices for about a month now and am hooked! The 10 day relaxed cleanse ended up not stopping. https://ninaisinhere.home.blog/2019/01/20/youjuice-relaxed-cleanse/ However, I am still struggling to lose weight which is getting me down. Being in a wheelchair and unable to exercise easily and regularly is … Continue reading Youjuice Juice Cleanse
I have had MS for 17 years and I'm now unable to sit, stand or walk unaided. I use a powered wheelchair to get around and a stand aid plus 2 carers to for transfers. I take 10 mg of baclofen in the morning, 10 mg at lunchtime then at night I take 30 mg … Continue reading The CBD Oil Voyage of Discovery
At this time of year when the focus is on whether or not we are loved enough for cards and roses, should we not be checking in on ourselves first? My need for self-care actually came from having to surrender to full physical care. It took away the control I had over my ability to … Continue reading Being your own Valentine 💚
Chaos in Slow Motion - Nina’s Life - More Than Meets the Eye 